For WildCherry - Autisim or better yet, Asperger's Disorder

Awww, thanks Dustin.

[quote="Dustin Biery"
Deb, you are such a giving person and I think that it is great that you have helped with the reseach and info that you have provided. So many people get so hung up on one thing, they see black and white, and no grey. He has Asperger, side effect can be ADD ADHD like symptoms...doesn't mean he is ADD/ADHD, mean he has Aspergers. Jebus crispus, people can be so damn dense at times!!![/quote]

thanks anna lol )

yup deb gave me some good leads. my comp is fryed so most my links are stuck in net land some where.

something i did manage to gather are some sititics. VERY INTERSTING ONES at that. now im wishing more then ever i had a darn printer, lol

but any way acording to last years servays 2007 form the food and drug and the center for dieses (sp) control for both the usa and just california i was able to find that .... let me get my scrach paper here. lol

ok it woudl seem that in california there was a "rise in diagnosed autisam in children born in the years of 1997-2001" my son was born in 1998, it would seem that some other studys where able to link vacanations that where givein to the babys dering the first day of birth at the hosptal. of witch there was a high amount of murcury. (sp) murcury has been proven to cause brain disfunctions and poor develment of the brain. a long with a host of other issues.

right now in the usa there is estemated that 1 in every 94 males have some form of autisam.
of them who where later diagnoses with autisam(78%) where first diagnosed with what they call a (2nd dary syndrom) with inclue but are not limited to trets X willamsons and "ADD" or "ADHD"
of the (78%) of them miss diagonsed with the 2nd syndrom 53% of them where diagonsed with ADD or ADHD.
of the 53% of them who where treated for ADD or ADHD insted of the root issue of autisam there was a 92% FAILOR RATE.!!!!! in treament and cure.

well duh ya think? lmao

sooo mmm ....

well we have been to doc after doc shrink after shrink. EVERY ONE OF THEM say their is nothing worng with my son. not add or adhd. nor any typ of autisam. LMAO.

with that high a rate why is it soo hard to get a diagosis one would ask?
well that is easy to understand really. its the scale or the "spectrom" they use to diagnose autisam. its so VAST AND SOO WIDE that 2 children or person diagosed with the SAME form of autisam can be two filp sids of a coin in simtoms.

it is expecaly hard to diagonse ashinbergers autisam. it can take YEARS AND MANY TEST AND DOCTORS to even scrach the serface of a diagonses of these children. in the mean time the simtums of the autisam can seem to just go a way or they "grow out of it" well the fact is that these children learn to work around their autisam and so they learn to adpit to normal socal functions. learnin to cary on normal lifes and jobs or familys. meanwile as the children wait to be diagonsed with autisam they are subject to the (quick fix) ideas of treating the 2nd sindrom (in this case with terry add) to a 92% failor rate.

the question now is HOW THE HELL DO I PROVE this to not only his teachers but his doctors.

lol i think im gonna put my foot down in mondays meeting and demand they change his IEP. and if that means some one stands beside him 100% of the day and taps his paper as a constant reminder to compleat the next problem then SO BE IT. and if the problem on the page is right regardless if "work is shown" then it DAM WELL BEST BE MARKED as correct.

i need to get on paper his entelagance. i need to prove it on a academic scale. if that means we have to have his teachers sit besided him EVERY SEC to do that then so be it. they will have to just acept he is gonna need that indivisual help daily.

yes serina - have him assessed by two people at the same time - i had papers to prove Paul had dylexia too and that helped heaps. Paul had the clear speech and vocubulary of a 16 year old with writing abilities of a nine year old when he was 13 years old.

I had to invite a vice president fo SPELD (learning disability) to talk to Paul as he was rather unsettled and to convince my mother plus to find out if Paul could go back to college for thrid year wheich he didn't want to... Zannie convinced Paul that she is the same as him and agreed for him to go to work instead of going back to negative school the following year.

try and find an adult with similar intelligence and autism to help you? most likely more helpful too.

i had a mother asking me if i was deaf, born deaf and from rubella - i said yes to all these and she invited me to her home to ask me all sorts of questions she wanted to know... she had adopted a baby girl who turned out to be profoundly deaf when told she cant have any more babies after having two sons herself. she said i had helped her much more than a visiting teacher for parents of deaf babies. her daughter grew up to be a really lively and affectionate girl.

there's always a way! hugs serina

If I could, I would be sat next to you in that meeting. Just know I am there in spirit.

thank ya guys for all your help and suport. its truely very kind and sweet of you guys.

well up date i have a list of 6 doctors for terry. i have on appt set for nov 18 at 830 the others I WILL have set soon too. maybe its over board. but after lookin over all the shcools crap and evals it looks to much to me that they are setin us up for forced intorvention. with a forced diagnosis of add. this might get VERY UGLY very quckly. dan will be going monday to the meeting he has asked that i pretty much just stay quite let him do the talkin and work. we are on 100% agreement so im sure there will be no devide and concore with this team. but he has desided that terrys counsler needs to be takeing out of the pic asap.
when i talked iwth terry last night he started crying demanding "i cant be atusic!!!! im not mental" he said "mrsXXXX said atusic means mental. im not mental mommy."

that BIT**** TOLD MY SON that he was mental??? bullcrap. she is forceing him in to a brain washed sence of her diganoses and she is not yet a doctor. F**** that crap. the bit*** is soo out of this pic.


ooo a little more info in julia ill post in her post.

Oh man WC!!!!!!!! How dare that teacher do something like that to your son!!!!!!!! I would have her hung naked upside down by her toe nails in the middle of winter in the frozen tundra for that! What a *beep*!!!!!!!!!!!

yeah well she is gonna be out of the pic monday.

guess what i got guys???

well siting here rackin my brain over and over and over HOW THE HELL DO I PROVE THIS how the hell where the hell what hte hell (POUNDING HEAD ON KEY BORD OVER AND OVER)

yeah i have lost a lot of sleep over this the last few weeks expecaly. but more so over the last few years.

when i got a voice mesage.... it was cindy. mm a family friend who has lived in my fathers house for oo some 18 years now. any way. talkin to her it DAWNED ON ME I HAVE A SISTER WITH AUTISAM AND HER SON IS TO. DUH!!!! hehe sooo i call my step mom. and ask her who she works with to prove her sons autisam.... well she really didnt know much other then some specaliset in her school district. but then she recalls a women she rides to school with every day. to the collage. SHE HAS 8 KIDS. 6 of the 8 are atustic. this women is goin to collage to get papers to beable to hole more power in child intorvention. see this women is a parant advacat. BOOOOWWWWWWWWYYYAAH!!! she has delt with this for so many years with soo many kids of her own that she now goes in with other parants like me (she had the same probs as me at one time only x8) so she has made it her gole to deal with parants like us and help us. is now goeing to school to get the degrees in it to. but has GREAT AMOUNTS OF EXPERANCE.

this women hit my prob on the HEAD OF THE NAIL she was almost tellin me what the hell my probles where with the schools doctors and ect ect. and she was RIGHT ON THE MONEY. the women knows her crap.

eather way i told her i fear they are tryin to push a introvention and force meds on my son for add when i just KNOW IN MY SOUL it is not add.

she said oo hell no they can not do that and she has the back up numbers and persons in goverment to call to back it up. she has delt with this so many years with her oun kids as well with over 30 other parants. all these places that will not let terry in cuz he is not atuistic enought HAVE NO CHOICE even if it takes 6 months to get the boy in THEY HAVE TO TAKE HIM and the shcool HAS TO COMPLY. regardless of funds or hands to do so.

so this week end im taking all terrys info evals and test and all his work (yes i have every single paper my son has done in clase or homework over the last 3 years) to her. we will go over it in detail. and basicly she said im lookin at this the worng way. im lookin at it as ammo to shoot terry down. when in reality its all ammo provided by them to FORCE THEM TO DEAL terry. and to get them NOT I BUT THEM to prove his atusim.

I HAVE A SENCE OF RENEWED HOPE HERE GUYS. please keep up the prayers and good wishes. and tossin a few lucky lucky chicken bones chants for me to. lol

yay!!!!!! Oh i am soooo very glad for ya serina hugs

that a voice message helped you to get positive and supportive help for Terry. Many good lucks - wishes and prayers for both of you plus Dan and the whole family.

Well done you for pulling it together and coming up with a very strong plan of action! You have my prayers and all the support I can send your way. Go get'em girl!

well part of our game plan ........

ok she called back last night. some time this weekend we will all get together and work out more details. her haveing 8 kids keeps her bissy expcealy with each one haveing some kind of austism. or syndrom. 2 of the babys are hers and her husbans by birth. the other 6 where leagley adopted babys from birth. most from drug mommys. so they have a HUGE host of issues all over the mental and physical bards.

so for my homework dan and i are to come up with a list of what we want for terry. what OUR GOLE IS not the schools. what services we feel terry will benafit from. regardless if the school said they can do it or not,

NO LONGER will there be a fight over what terrys "problem" is.

this game plan is about learning and egucation. it is NOT THEIR JOB to anilaize my son. it is there job to teach him. no mater what it takes to do that.
1.GET RID OF THE COUNSLER!!! her services are not needed and i have documents to prove that. fomr many years and teachers.
2. he will be placed in a "normal" class room. takein out of specal edd class. with a aid to sit beside him and explain in DETAIL over and over if needed each step of what is expected of him. we need to teach his brain to work in a step by step order. to produce the completed out come of work on paper.
3. i want to see him LEARN use his brain to learn not remember.
4. if the anwser is right. then it needs to be marked as such. no longer will terry be made ot feel as he is wrong. but insted will be tought why the awser to the problem is wrong. if this means repeating over and over and over each step in tell the little light in his brain come on. then so be it. WE WILL ACEPT HE IS A 10 YEAR OLD LITTLE BOY. AND WILL SOME TIMES MAKE MISTAKES.
5. i want my son to see and understand that there is NOTHING WORNG WITH HIM!! and to respond as such.
6. i want to see his academics on PAPER. no more guess work. no more "we know he is over intelagen but cant prove it " crap. i want him to learn how to get it on paper. we need to teach his brain to work and to produce work on paper. he needs to LEARN HOW TO DO THIS. even if it means repeating the steps over and over. then so be it. in tell his his brain can adomaticly take over the steps on its own. we "normal people" need to teach his brain to work in a "normal way" exersize it if that makes sence train it to go one step at a time.
7. old evadance and proof of my sons "issues" for lack of better word. used to create a NEW plan of action. to help him to LEARN how to function as needed for the academic proof we need ON PAPER. so that in the end of all this work on both our sides and his. show secess(sp) not failor. " JUST THE FACTS MAMA" not the guess work. i want my son to see he can and had done well and good. he seceeded. (sp)

a few other things will come a long as we cross the bridges. and we will deal with them as they do.

the awsome thing about terry is all this and more then what we are asking of him HE CAN DO!! he can LEARN to do this. with proper training and work. we can get him to LEARN. he can adapt to what we expect of him. he is not "mental" he is just differant. if we can tap in to that and teach and train his brain to work in a step by step manor. then we can get all these resolts and more form him. HE CAN FEEL GOOD about him self again. and he can learn to use paper evadance to prove why he has the right to feel good about him self. terry is a very blessed little boy. that his mind is "moldable" if you will. we just need to HELP HIM or TEACH him how to mold it.

if they disagree with our terms and our plan as parants. then we will force them to MEDICLY PROVE we are worng. but forceing them to foot the bill to have him sent to the california dionogstic center (sp) this is a 3 day testing facilty. with 10 doctors all specalized in diferant "mental" issues. they will test and anilize terry and all brain storm their findings to come up with a diagnoses. in the 3 days i to and dan will be tested and consolted with all our information. all this will be combined in to a finle outcome.

also have him sent to IRC. inland reganal center. (same consept with doctors just less extencave.)

its no longer about who is right or worng it is about TEACHING TERRY what i have all ways wanted most. and what he NEEDS MOST.

Stick to the facts and the basics. There is a saying in the business world...K.I.S.S....Keep It Simple Stupid. I think that maybe the world of higher education can grasp the basics, wouldn't you agree??? LOL.

Here's hoping you can get your stand across in a strong and undisputable way.

ok yesterday was the meeting. our parant avacat coudl not make it after all. must have had an emgerancy. lol no biggie though.

well i didnt get all i was hopeing or heading to BUT. WE DID make some first steps in the right direction.

dan ran the meeting for the most part and i just sat back not sayin to much. dan and i already had a game plan he did stick to it for the most part with in reason.

1 the counsler. terry will be "winged" off her slowly over the next few weeks. terry really does like her. BUT SHE CLEARLY understands her visits with my son will be VERY limited. and she is ONLY PERMITTED to speak with him about certain things. no more diagoses what so ever. SHE REALLY DONT LIKE ME AT ALL i feel the same about her. we have that agreement. she however LOVES dan. and was praizeing him up and down all over. (cough kiss ass cough) but she will slowly be takein out of the pic. so that is a step in the right direction any way.

2 normal class room. he will be spending MUCH MORE TIME in a normal class room seting. he will not be placed as "mrs soandso's normal class student" but will spend many more houres in her class. he is sperated form him 'buddys" and is siting next to her top student. we hope he will used this student as a example. she now understands a little more about terry. as she her self didnt see any ADD with terry but just a lack of socal ecknolagement to her teachings. once i explained terrys to her it seemd to me that she did get the pic. and seems to agree. he will still be takein back to the edd room to complete any thing he dont in class.

3 relearning to use his brain in steps.... piff a hopeless battle they still disagree with me there so i tryed covert option of sugestons to hopefuly get the point across of the need for this. i sugested the use a differant wording when "prompting" my son to do his work.

4 corect awsers marked as such. this will or should no longer be a prob. from here on out if the awser is right no mater how he does it it will be marked as such. and no longer are they to say "terry you got this awser wrong" but insted are to say " terry this awser is wrong because" its just simple wording to get a better response form terry. if you say terry you got thsi awser worng, terrry only notices you said that HE GOT IT WRONG and cant get past that to move on with the teaching. changeing the words for him to say the awser is wrong. gides his brain to wonder why it is wrong giveing you a chnace to nip it all in the bud and explain why. remember he has no comon sence like other kids. and takes every word litteraly.

5. self asteam. or him seeing not hing is worng with him. this is what his counsler is SOPOTA be doing. and she will contiue to do that untell her winging prosess is over. he is not a problem child. infact he still carryes the rep of the "perfect polite respectful careing peace maker" so she dont need to help him understnad him self or work on behavor. she can just build his self asteam and STFU on the side.

6. showin his academics on paper. ok well they didnt really fully agree wih me on his teachin his brain to get back to step 1 2 3 4 order. but did agree to do more verbal testing and work in the class room. meaning he will read the questions. and tell them the anwsers. if the anwer is corect it will reflect on the test as such. then he will be asked to wright it down. but regardless if we get in writen down or not. he will still get credit for completing it. acording to his verbal anwsers.

7 old info being used to help us get a new game plan.. well sence it is FINDLY goin in the right direction. and cuz i did put the kiabosh on anilazeing and diagonseing of my son. i didnt see to much reason to drag this one up.

as for them they will do it their way and i will do it my way.

i will continue to reteach terrys brain the step by step method here at home. as this is want i KNOW he truely needs. i guess i cant expect them to understand in only 2 short years what i have learned over 12.

and as for him "not paying atention to them" i will work even more on his socal skills and graces. i will teach him the he must make eye contat with the teachers every time he is adressed. as i know for a fact he is payin atenton. to them. i now will work on teaching him to show it socaly.

f*** them i as mommy will not fallow their plan any more. i will doit my way here at home.

Well, I have to say congratulations. It may not have turned out the way you wanted it all to, but the meeting took place and head way was made. Just keep doing what you can for Terry at home. And keep a close eye on the school to make sure they are living up to their end of the bargin.

Hopefully it will all be enough to pull Terry through and get him on the right path. He is a brilliant boy, and I wish him tons of successes in his future.

Yeah... i hope so hun. really do. but really dont expect a over night trun around here. sigh. but hopefuly it will work. my only other step is to sit my ass in there on a daily bases to asure it is being complyed with to a T.

dan has sugested that i STFU and let him deal with this for now on with the shcools and such. he said i stress and worked to dam hard over the years with this just on terry alone. that is was his trun to deal with them....... sigh why the hell cant i trust him on this?? i know i should beable to. i mean he is his father. but UGGGGGGG i have to fix my husbans mistakes ALL THE DARN TIME. i DONT need a reacerace of this drama to have to fix OVER AGAIN.

siiiiiiiiiiiiiiiggggggghhhhhhhh,,,,,,

piff who the f*** knows any more... he is right i have stressed to much the last few weeks i have not sleep with out dreamin about htis drama. not spent a min on this comp not resurching this. not had a min of peace with out it repeating over and over and over in my mind every detail WHAT AM I MISSING?? to the point i cetch my self talkin out loud to my self over and over the same things.

maybe he is right. i just hate to have to "trust" him or trust any one for that matter.

i just cant get over this feelin of incomplet...something is still a miss i just know it and feel it deep with in me. SOMETHING IS NOT DONE. something is not here. SOMETHING WAS NOT ACOMPLISHED but God help me!!!!!(yes im beggin him) i just CAN NOT PUT MY FINGER ON IT and it will eat at me in tell it does fall in place.

oo hell maybe im the nut case here lol i dont know any more

Well, sometimes we have to step back from the situation in order to see the big gapping hole that was missed. Take a breather for a bit. There isn't much (at this point) that hubby will have to do with the school and you need to take the time to see things clear again.